The CFS Untied Resource Center was founded out of the need for good information in a comprehensive and easy format. It's been
evident for a long time that if the community wants to promote such a resource, we (PWCs) need to provide it ourselves.
We are not an advocacy group. We hope to provide the resources needed as new advocacy groups form and grow. We hope to
provide a data base of solid information for patients and carers. We hope to provide a go-to source for journalists and educators.
Since research, news, and developments occur at a rapid pace, the Resource Center will always be in a state of flux. Our goal is to
present facts rather than editorial. The blog section represents the editorial from the community.
The original founders of this initiative are independent advocates, with no affiliations to any major groups. They include:
Lisa Petrison
Khaly Castle
Liz Willow
Otis Quila
John Herd
Dr. Yes
As we move forward, we hope to encourage participation from all who wish to keep the story straight. Therefore, we ask for and
welcome:
Please feel free to contact this project at info@cfsuntied.com.
evident for a long time that if the community wants to promote such a resource, we (PWCs) need to provide it ourselves.
We are not an advocacy group. We hope to provide the resources needed as new advocacy groups form and grow. We hope to
provide a data base of solid information for patients and carers. We hope to provide a go-to source for journalists and educators.
Since research, news, and developments occur at a rapid pace, the Resource Center will always be in a state of flux. Our goal is to
present facts rather than editorial. The blog section represents the editorial from the community.
The original founders of this initiative are independent advocates, with no affiliations to any major groups. They include:
Lisa Petrison
Khaly Castle
Liz Willow
Otis Quila
John Herd
Dr. Yes
As we move forward, we hope to encourage participation from all who wish to keep the story straight. Therefore, we ask for and
welcome:
- Submission of news articles and research literature that would be appropriate to post on this website.
- Submission of brief commentary to posted articles and literature. Commentary that would be appropriate might include
discussion of cohorts used in research, appropriate or inappropriate methods used in research, accuracy of news articles, etc.
- Volunteers to participate in the "Case Studies" project.
- Ideas for what you might like to see incorporated into this website.
Please feel free to contact this project at info@cfsuntied.com.
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